Dec 29, 2008 5:32 pm US/Eastern
Teen Uses Sweet 16 To Spread Lupus Awareness
NEW YORK (CBS) ―
Sweet 16 parties and quinceañeras are a tradition in many countries.
They symbolize a young girl's transition to womanhood. While most girls
want to be the focus of their sweet sixteen, one very special young
woman is using her party to spread awareness about a disease that
affects millions, including her.
Aiden Gallagher was a model child in most ways: fun-loving, athletic, and an A-student. Then at age 11 she developed lupus and her life changed dramatically.
"She had a near perfect GPA and very high aspirations to go on to a huge career in her future. Little by little those things are being stripped away," said Elizabeth Gallagher, Aiden's mother.
In the five years since she was diagnosed, lupus has spread to Aiden's brain. She's gained 80 pounds from medication side-effects, developed arthritis and been hospitalized almost 50 times.
"They can have chest pain, they can have problems thinking, they can have strokes, virtually every part of the body can be affected by lupus if it's not properly treated and controlled," said Dr. Thomas Lehman of the Hospital For Special Surgery.
And yet Aiden does not feel sorry for herself. Here's a hint of her amazing outlook: she gets senior citizens to make blankets that she distributes to patients in the hospital.
"You just can't think about it as 'I wish I was this, I wish I was that', because it's going to just drag you down," Aiden said.
Aiden decided to turn her Sweet 16 into a fundraiser for lupus awareness and research.
"By coming that night, you're giving a donation and everyone there will realize how important this is to my life, but it's not just my life. It's 1.5 million people's lives," Aiden said.
Her friends bought the dream dress her family couldn't afford. An anonymous donor is buying her a traditional tiara. And jeweler John Paradiso is turning her design into a butterfly pin, the symbol of lupus, to sell and raise funds for research.
The Grandview Restaurant in Poughkeepsie is going to host her party, an anti-Super Sweet 16 party.
"I want the people that I live by to realize instead of asking me everyday what lupus is to realize that there is something going on and that there is something you can do about it," Aiden said.
(© MMIX, CBS Broadcasting Inc. All Rights Reserved.)
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